{"id":25280,"date":"2025-05-07T08:15:44","date_gmt":"2025-05-07T08:15:44","guid":{"rendered":"https:\/\/cdchaiphong.gov.vn\/?p=25280"},"modified":"2025-05-07T08:15:44","modified_gmt":"2025-05-07T08:15:44","slug":"huong-ung-ngay-thalassemia-the-gioi-08-5-2025-voi-chu-de-chung-tay-vi-benh-thalassemia-doan-ket-cong-dong-uu-tien-benh-nhan","status":"publish","type":"post","link":"https:\/\/cdchaiphong.gov.vn\/index.php\/2025\/05\/07\/huong-ung-ngay-thalassemia-the-gioi-08-5-2025-voi-chu-de-chung-tay-vi-benh-thalassemia-doan-ket-cong-dong-uu-tien-benh-nhan\/","title":{"rendered":"H\u01b0\u1edfng \u1ee9ng ng\u00e0y Thalassemia Th\u1ebf gi\u1edbi 08\/5\/2025 v\u1edbi ch\u1ee7 \u0111\u1ec1: \u201cChung tay v\u00ec b\u1ec7nh Thalassemia: \u0110o\u00e0n k\u1ebft c\u1ed9ng \u0111\u1ed3ng, \u01b0u ti\u00ean b\u1ec7nh nh\u00e2n\u201d"},"content":{"rendered":"

B\u1ec7nh tan m\u00e1u b\u1ea9m sinh (hay c\u00f2n g\u1ecdi b\u1ec7nh Thalasemia) l\u00e0 m\u1ed9t b\u1ec7nh di truy\u1ec1n \u00a0b\u1ea9m sinh, c\u00f3 \u0111\u1eb7c \u0111i\u1ec3m l\u00e0 g\u00e2y tan m\u00e1u nhi\u1ec1u v\u00e0 th\u01b0\u1eddng xuy\u00ean d\u1eabn \u0111\u1ebfn thi\u1ebfu m\u00e1u m\u00e3n t\u00ednh. B\u1ec7nh g\u1eb7p \u1edf c\u1ea3 nam v\u00e0 n\u1eef, ng\u01b0\u1eddi m\u1eafc b\u1ec7nh c\u00f3 th\u1ec3 ph\u1ea3i \u0111i\u1ec1u tr\u1ecb su\u1ed1t \u0111\u1eddi, n\u1ebfu kh\u00f4ng \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb th\u01b0\u1eddng xuy\u00ean, \u0111\u1ea7y \u0111\u1ee7, s\u1ebd c\u00f3 nhi\u1ec1u bi\u1ebfn ch\u1ee9ng l\u00e0m b\u1ec7nh nh\u00e2n ch\u1eadm ph\u00e1t tri\u1ec3n th\u1ec3 tr\u1ea1ng, gi\u1ea3m s\u1ee9c h\u1ecdc t\u1eadp, lao \u0111\u1ed9ng. M\u1ed9t trong nh\u1eefng nguy\u00ean nh\u00e2n ch\u00ednh c\u1ee7a b\u1ec7nh Tan m\u00e1u b\u1ea9m sinh l\u00e0 do k\u1ebft h\u00f4n c\u1eadn huy\u1ebft. B\u1ec7nh n\u00e0y kh\u00f4ng th\u1ec3 ch\u1eefa kh\u1ecfi, t\u1ef7 l\u1ec7 t\u1eed vong cao. Tuy nhi\u00ean, c\u00f3 th\u1ec3 ph\u00f2ng b\u1ec7nh hi\u1ec7u qu\u1ea3 t\u1edbi t\u1edbi 90 – 95% b\u1eb1ng bi\u1ec7n ph\u00e1p kh\u00e1m s\u1ee9c kh\u1ecfe tr\u01b0\u1edbc khi k\u1ebft h\u00f4n \u0111\u1ec3 x\u00e1c \u0111\u1ecbnh xem c\u00e1 nh\u00e2n c\u00f3 mang gen b\u1ec7nh hay kh\u00f4ng, t\u1eeb \u0111\u00f3 gi\u00fap cho h\u1ecd c\u00f3 s\u1ef1 l\u1ef1a ch\u1ecdn \u0111\u00fang \u0111\u1eafn v\u1ec1 h\u00f4n nh\u00e2n c\u0169ng nh\u01b0 quy\u1ebft \u0111\u1ecbnh mang thai v\u00e0 sinh \u0111\u1ebb nh\u1eb1m sinh ra nh\u1eefng \u0111\u1ee9a tr\u1ebb kh\u00f4ng m\u1eafc b\u1ec7nh Tan m\u00e1u b\u1ea9m sinh.<\/p>\n

B\u1ec7nh tan m\u00e1u b\u1ea9m sinh \u0111\u01b0\u1ee3c th\u1ebf gi\u1edbi ph\u00e1t hi\u1ec7n v\u00e0 nghi\u00ean c\u1ee9u t\u1eeb n\u0103m 1925. T\u1ea1i Vi\u1ec7t Nam, b\u1ec7nh \u0111\u01b0\u1ee3c c\u00e1c nh\u00e0 khoa h\u1ecdc nghi\u00ean c\u1ee9u t\u1eeb n\u0103m 1960.\u00a0Ng\u00e0y Thalassemia th\u1ebf gi\u1edbi\u00a0l\u00e0 s\u1ef1 ki\u1ec7n ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe to\u00e0n c\u1ea7u \u0111\u01b0\u1ee3c k\u1ef7 ni\u1ec7m v\u00e0o\u00a0ng\u00e0y 8\/5 h\u00e0ng n\u0103m\u00a0nh\u1eb1m n\u00e2ng cao nh\u1eadn th\u1ee9c v\u1ec1 t\u00ecnh tr\u1ea1ng b\u1ec7nh n\u00e0y trong c\u1ed9ng \u0111\u1ed3ng v\u00e0 c\u00e1c nh\u00e0 ho\u1ea1ch \u0111\u1ecbnh ch\u00ednh s\u00e1ch \u0111\u1ecba ph\u01b0\u01a1ng, b\u00ean c\u1ea1nh vi\u1ec7c h\u1ed7 tr\u1ee3 v\u00e0 c\u1ee7ng c\u1ed1 tinh th\u1ea7n cho c\u00e1c n\u1ea1n nh\u00e2n \u0111\u00e3 chi\u1ebfn \u0111\u1ea5u nhi\u1ec1u n\u0103m v\u1edbi c\u0103n b\u1ec7nh n\u00e0y.<\/p>\n

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Thalassemia l\u00e0 m\u1ed9t b\u1ec7nh di truy\u1ec1n gen l\u1eb7n x\u1ea3y ra do s\u1ef1 khi\u1ebfm khuy\u1ebft trong vi\u1ec7c t\u1ed5ng h\u1ee3p huy\u1ebft s\u1eafc t\u1ed1 Hemoglobin. B\u00ecnh th\u01b0\u1eddng huy\u1ebft s\u1eafc t\u1ed1 \u0111\u01b0\u1ee3c t\u1ed5ng h\u1ee3p b\u1edfi hai chu\u1ed7i alpha v\u00e0 hai chu\u1ed7i beta globin, khi\u1ebfm khuy\u1ebft trong gen t\u1ed5ng h\u1ee3p m\u1ed9t trong hai lo\u1ea1i chu\u1ed7i globin n\u00e0y s\u1ebd g\u00e2y ra b\u1ec7nh. Khi kh\u00f4ng c\u00f3 \u0111\u1ee7 Hemoglobin d\u1eabn \u0111\u1ebfn vi\u1ec7c c\u00e1c t\u1ebf b\u00e0o h\u1ed3ng c\u1ea7u c\u1ee7a c\u01a1 th\u1ec3 kh\u00f4ng ho\u1ea1t \u0111\u1ed9ng b\u00ecnh th\u01b0\u1eddng v\u00e0 t\u1ed3n t\u1ea1i v\u1edbi th\u1eddi gian ng\u1eafn h\u01a1n, v\u00ec v\u1eady m\u00e1u trong c\u01a1 th\u1ec3 s\u1ebd c\u00f3 \u00edt t\u1ebf b\u00e0o h\u1ed3ng c\u1ea7u kh\u1ecfe m\u1ea1nh ho\u1ea1t \u0111\u1ed9ng h\u01a1n. C\u00e1c t\u1ebf b\u00e0o h\u1ed3ng c\u1ea7u c\u00f3 nhi\u1ec7m v\u1ee5 mang oxy \u0111\u1ebfn t\u1ea5t c\u1ea3 c\u00e1c t\u1ebf b\u00e0o c\u1ee7a c\u01a1 th\u1ec3. Oxy \u0111\u01b0\u1ee3c xem l\u00e0 ngu\u1ed3n cung c\u1ea5p n\u0103ng l\u01b0\u1ee3ng cho t\u1ebf b\u00e0o \u0111\u1ec3 ho\u1ea1t \u0111\u1ed9ng. V\u00ec v\u1eady, khi c\u00e1c t\u1ebf b\u00e0o kh\u00f4ng \u0111\u1ee7 nhi\u1ec1u v\u00e0 kh\u1ecfe m\u1ea1nh d\u1eabn t\u1edbi vi\u1ec7c cung c\u1ea5p oxy cho c\u01a1 th\u1ec3 b\u1ecb thi\u1ebfu h\u1ee5t. (thi\u1ebfu m\u00e1u).<\/p>\n

Thalassemia \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn 56.000 ca mang thai tr\u00ean to\u00e0n th\u1ebf gi\u1edbi, trong \u0111\u00f3 c\u00f3 30.000 ca m\u1eafc b\u1ec7nh Thalassemia th\u1ec3 n\u1eb7ng v\u00e0 h\u1ea7u h\u1ebft nh\u1eefng b\u1ec7nh nh\u00e2n n\u00e0y \u0111\u1ec1u sinh ra \u1edf c\u00e1c qu\u1ed1c gia ngh\u00e8o ho\u1eb7c k\u00e9m ph\u00e1t tri\u1ec3n. Vi\u1ec7c \u0111i\u1ec1u tr\u1ecb b\u1ec7nh Thalassemia th\u1ec3 n\u1eb7ng c\u00f3 th\u1ec3 c\u1ef1c k\u1ef3 t\u1ed1n k\u00e9m v\u00e0 c\u00f3 th\u1ec3 bao g\u1ed3m gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c, truy\u1ec1n m\u00e1u li\u00ean t\u1ee5c v\u00e0 li\u1ec7u ph\u00e1p th\u1ea3i s\u1eaft. Do \u0111\u00f3, \u0111i\u1ec1u c\u1ea7n thi\u1ebft l\u00e0 ph\u1ea3i ng\u0103n ng\u1eeba c\u00e1c khuy\u1ebft t\u1eadt b\u1ea9m sinh (Thalassemia) tr\u01b0\u1edbc khi sinh thay v\u00ec ti\u1ebfp t\u1ee5c c\u1ed1 g\u1eafng \u0111i\u1ec1u tr\u1ecb t\u00ecnh tr\u1ea1ng n\u00e0y sau khi sinh. S\u00e0ng l\u1ecdc tr\u01b0\u1edbc sinh c\u00f3 th\u1ec3 h\u1ed7 tr\u1ee3 x\u00e1c \u0111\u1ecbnh t\u00ecnh tr\u1ea1ng b\u1ec7nh Thalassemia \u1edf giai \u0111o\u1ea1n thai nhi v\u00e0 nh\u1eadn th\u1ee9c c\u1ee7a ng\u01b0\u1eddi d\u00e2n \u0111\u00f3ng vai tr\u00f2 quan tr\u1ecdng trong vi\u1ec7c ki\u1ec3m so\u00e1t s\u1ed1 ca b\u1ec7nh Thalassemia. Ng\u00e0y Thalassemia Th\u1ebf gi\u1edbi c\u00f3 th\u1ec3 l\u00e0 m\u1ed9t trong nh\u1eefng n\u1ec1n t\u1ea3ng c\u01a1 h\u1ed9i m\u00e0 m\u1ed9t s\u1ed1 t\u1ed5 ch\u1ee9c t\u01b0 nh\u00e2n v\u00e0 ch\u00ednh ph\u1ee7 th\u1ef1c hi\u1ec7n c\u00e1c chi\u1ebfn d\u1ecbch gi\u00e1o d\u1ee5c c\u00f4ng ch\u00fang v\u00e0 ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe cho ph\u1ee5 n\u1eef mang thai, bao g\u1ed3m s\u00e0ng l\u1ecdc di truy\u1ec1n, t\u01b0 v\u1ea5n v\u00e0 ch\u1ea9n \u0111o\u00e1n tr\u01b0\u1edbc sinh. Ngo\u00e0i ra, v\u00e0o ng\u00e0y n\u00e0y, c\u00e1c nh\u00e0 ho\u1ea1ch \u0111\u1ecbnh ch\u00ednh s\u00e1ch c\u00f3 th\u1ec3 l\u1eadp k\u1ebf ho\u1ea1ch ho\u1eb7c tri\u1ec3n khai c\u00e1c chi\u1ebfn l\u01b0\u1ee3c\/ch\u00ednh s\u00e1ch m\u1edbi cho c\u00e1c n\u1ea1n nh\u00e2n Thalassemia, bao g\u1ed3m truy\u1ec1n m\u00e1u mi\u1ec5n ph\u00ed ho\u1eb7c cung c\u1ea5p h\u1ed7 tr\u1ee3 t\u00e0i ch\u00ednh.<\/p>\n

Ng\u00e0y Thalassemia Th\u1ebf gi\u1edbi \u0111\u01b0\u1ee3c t\u1ed5 ch\u1ee9c h\u00e0ng n\u0103m nh\u1eb1m \u0111\u1ea9y m\u1ea1nh c\u00e1c ho\u1ea1t \u0111\u1ed9ng truy\u1ec1n th\u00f4ng, gi\u00e1o d\u1ee5c n\u00e2ng cao nh\u1eadn th\u1ee9c, chuy\u1ec3n \u0111\u1ed5i h\u00e0nh vi c\u1ee7a ng\u01b0\u1eddi d\u00e2n, c\u1ee7a gia \u0111\u00ecnh, c\u1ed9ng \u0111\u1ed3ng v\u1ec1 t\u01b0 v\u1ea5n, t\u1ea7m so\u00e1t, ch\u1ea9n \u0111o\u00e1n v\u00e0 \u0111i\u1ec1u tr\u1ecb s\u1edbm b\u1ec7nh t\u1eadt tr\u01b0\u1edbc sinh v\u00e0 s\u01a1 sinh v\u00ec m\u1ee5c ti\u00eau c\u1ea3i thi\u1ec7n, n\u00e2ng cao ch\u1ea5t l\u01b0\u1ee3ng gi\u1ed1ng n\u00f2i v\u00e0 s\u1ef1 ph\u1ed3n vinh c\u1ee7a x\u00e3 h\u1ed9i h\u01b0\u1edbng t\u1edbi m\u1ed9t t\u01b0\u01a1ng lai h\u1ea1n ch\u1ebf \u0111\u1ebfn m\u1ee9c th\u1ea5p nh\u1ea5t ng\u01b0\u1eddi khuy\u1ebft t\u1eadt do c\u00e1c b\u1ec7nh tan m\u00e1u b\u1ea9m sinh g\u00e2y ra.<\/p>\n

Ch\u1ee7 \u0111\u1ec1 c\u1ee7a Ng\u00e0y Thalassemia Th\u1ebf gi\u1edbi n\u0103m 2025 l\u00e0 “Chung tay v\u00ec b\u1ec7nh Thalassemia: \u0110o\u00e0n k\u1ebft c\u1ed9ng \u0111\u1ed3ng, \u01b0u ti\u00ean b\u1ec7nh nh\u00e2n”.\u00a0Ch\u1ee7 \u0111\u1ec1 t\u1eadp trung v\u00e0o vi\u1ec7c ch\u0103m s\u00f3c l\u1ea5y ng\u01b0\u1eddi b\u1ec7nh l\u00e0m trung t\u00e2m, th\u00fac \u0111\u1ea9y s\u1ee9c kh\u1ecfe to\u00e0n di\u1ec7n gi\u1ea3i quy\u1ebft c\u00e1c nhu c\u1ea7u y t\u1ebf, t\u00ecnh c\u1ea3m v\u00e0 x\u00e3 h\u1ed9i, \u0111\u1ed3ng th\u1eddi huy \u0111\u1ed9ng c\u1ed9ng \u0111\u1ed3ng qu\u1ed1c t\u1ebf \u01b0u ti\u00ean b\u1ec7nh nh\u00e2n Thalassemia trong c\u00e1c ch\u00ednh s\u00e1ch ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe.<\/p>\n

\u0110\u1ec3 gi\u1ea3m thi\u1ec3u g\u00e1nh n\u1eb7ng \u0111i\u1ec1u tr\u1ecb v\u00e0 ch\u0103m s\u00f3c ng\u01b0\u1eddi b\u1ec7nh, c\u00f3 th\u1ec3 ph\u00f2ng b\u1ec7nh hi\u1ec7u qu\u1ea3 b\u1eb1ng c\u00e1c bi\u1ec7n ph\u00e1p nh\u01b0 t\u01b0 v\u1ea5n v\u00e0 kh\u00e1m s\u1ee9c kh\u1ecfe tr\u01b0\u1edbc khi k\u1ebft h\u00f4n;\u00a0t\u1ea7m so\u00e1t, ch\u1ea9n \u0111o\u00e1n, \u0111i\u1ec1u tr\u1ecb s\u1edbm b\u1ec7nh, t\u1eadt tr\u01b0\u1edbc sinh v\u00e0 s\u01a1 sinh\u00a0<\/em>t\u1eeb \u0111\u00f3 gi\u00fap cho h\u1ecd c\u00f3 s\u1ef1 l\u1ef1a ch\u1ecdn \u0111\u00fang \u0111\u1eafn v\u1ec1 h\u00f4n nh\u00e2n c\u0169ng nh\u01b0 quy\u1ebft \u0111\u1ecbnh mang thai v\u00e0 sinh \u0111\u1ebb nh\u1eb1m sinh ra nh\u1eefng \u0111\u1ee9a con kh\u00f4ng m\u1eafc b\u1ec7nh tan m\u00e1u b\u1ea9m sinh\u00a0(Thalasemia).<\/p>\n

M\u1ed7i c\u00e1 nh\u00e2n v\u00e0 c\u1ed9ng \u0111\u1ed3ng h\u00e3y\u00a0t\u00edch c\u1ef1c tham gia c\u00e1c ho\u1ea1t \u0111\u1ed9ng h\u01b0\u1edfng \u1ee9ng Ng\u00e0y Thalassemia Th\u1ebf gi\u1edbi (8\/5) n\u0103m 2025 v\u1edbi ch\u1ee7 \u0111\u1ec1: \u201cChung tay v\u00ec b\u1ec7nh Thalassemia: \u0110o\u00e0n k\u1ebft c\u1ed9ng \u0111\u1ed3ng, \u01b0u ti\u00ean b\u1ec7nh nh\u00e2n”\u00a0\u0111\u1ec3 gi\u00fap thay \u0111\u1ed5i cu\u1ed9c s\u1ed1ng c\u1ee7a nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh Thalassemia.<\/p>\n

V\u0169 Tuy\u1ebft – Khoa TTGDSK, CDC H\u1ea3i Ph\u00f2ng<\/strong><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

B\u1ec7nh tan m\u00e1u b\u1ea9m sinh (hay c\u00f2n g\u1ecdi b\u1ec7nh Thalasemia) l\u00e0 m\u1ed9t b\u1ec7nh di truy\u1ec1n \u00a0b\u1ea9m sinh, c\u00f3 \u0111\u1eb7c \u0111i\u1ec3m l\u00e0 g\u00e2y tan m\u00e1u nhi\u1ec1u v\u00e0 th\u01b0\u1eddng xuy\u00ean d\u1eabn \u0111\u1ebfn thi\u1ebfu m\u00e1u m\u00e3n t\u00ednh. B\u1ec7nh g\u1eb7p \u1edf c\u1ea3 nam v\u00e0 n\u1eef, ng\u01b0\u1eddi m\u1eafc b\u1ec7nh c\u00f3 th\u1ec3 ph\u1ea3i \u0111i\u1ec1u tr\u1ecb su\u1ed1t \u0111\u1eddi, n\u1ebfu kh\u00f4ng \u0111\u01b0\u1ee3c \u0111i\u1ec1u […]<\/p>\n","protected":false},"author":21,"featured_media":25281,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"tdm_status":"","tdm_grid_status":"","footnotes":""},"categories":[121],"tags":[],"class_list":{"0":"post-25280","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-tin-noi-bat"},"_links":{"self":[{"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/posts\/25280","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/users\/21"}],"replies":[{"embeddable":true,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/comments?post=25280"}],"version-history":[{"count":1,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/posts\/25280\/revisions"}],"predecessor-version":[{"id":25282,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/posts\/25280\/revisions\/25282"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/media\/25281"}],"wp:attachment":[{"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/media?parent=25280"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/categories?post=25280"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cdchaiphong.gov.vn\/index.php\/wp-json\/wp\/v2\/tags?post=25280"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}